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Useful organisations

This section of DLF Data contains details of numerous voluntary organisations, Government agencies, support groups and other contacts that may be useful to older and disabled people and their carers. If you find any information that is incorrect please email Data Services to let us know which 'Contact' is incorrect and what information needs changing. If you would like to be added to the database please complete these questions.

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Batten Disease

The Batten Disease Family Association (BDFA) is the only organisation in the UK which aims to support families, raise awareness and facilitate research into Batten Disease. It operates a national networking and support service for families and professionals, whilst also offereing newsletters, conferences and an information service.

Address:

  • The Old Library
  • 4 Boundary Road
  • Farnborough
  • GU14 6SF

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