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Useful organisations

This section of DLF Data contains details of numerous voluntary organisations, Government agencies, support groups and other contacts that may be useful to older and disabled people and their carers. If you find any information that is incorrect please email Data Services to let us know which 'Contact' is incorrect and what information needs changing. If you would like to be added to the database please complete these questions.

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A B C D E F G H I J K L M N O P Q R S T U V W X Y Z

Birth Defects

Group formed to help children and their parents and also adults to ensure a better understanding of this condition in which multiple joint derformities are present at birth.

Address:

  • 45 Milton Road
  • Hanwell
  • W7 1LQ

Links with a network of more than 1,000 self-help and mutual support groups for families caring for children with special needs and disabilities. Local groups usually cover a range of special needs, but more than 400 are run nationally for families where children have a specific, sometimes rare disorder. Offers support and training to parents involved in running these groups both locally and nationally. The information and advice service links families together and encourages mutual support between parents. Provides a helpline and publishes a quarterly newsletter, range of leaflets, and the CAF Directory of specific conditions and support groups. Helpline open Mon-Fri, 9.30am-5pm.

Address:

  • 209-211 City Road
  • London
  • EC1V 1JN

Aims to improve child health in the UK by funding and promoting basic medical research into all birth defects. Provides support to people awaiting the outcome of tests or having received a diagnosis.

Address:

  • Newlife Centre
  • Hemlock Way
  • Cannock
  • WS11 7GF

Promotes the relief of children with upper limb deficiencies by encouraging mutual aid and support between families. Open Mon-Fri, 9.30am-5pm.

Address:

  • P.O. Box 54
  • Helston
  • TR13 8WD

National support group for families with children with trisomy 13 (Patau's Syndrome) and 18 (Edwards Syndrome), and related chromosome disorders. Provide information and advice on the syndromes and can link families together for mutual support.

Address:

  • 48 Froggatts Ride
  • Walmley
  • Sutton Coldfield
  • B76 2TQ

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