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Useful organisations

This section of DLF Data contains details of numerous voluntary organisations, Government agencies, support groups and other contacts that may be useful to older and disabled people and their carers. If you find any information that is incorrect please email Data Services to let us know which 'Contact' is incorrect and what information needs changing. If you would like to be added to the database please complete these questions.

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Children's healthcare charity specially formed to ensure that sick children always receive the highest standard of care possible. Works to improve the services and attitudes to the way children are treated when they are unwell in hospital, at home and in the community.


  • 32b Buxton Road
  • High Lane
  • Stockport
  • SK6 8BH

Campaigns to protect breastfeeding and halt the promotion of artificial feeding. Raises awareness of the dangers of artificial infant feeding and campaigns for improvement to the labelling and composition of artificial feeds.


  • 34 Trumpington Street
  • Cambridge
  • CB2 1QY

Helps parents and professionals with information on where to start if they think their child is having problems at school; what to do if they are having trouble getting an assessment for their child; where they can get professional legal help if needed at any stage during the assessment, statement or appeals procedures; how to choose the right special school and post 16 further education colleges; post 19 (adult) homes and educational establishments. Runs a local support group and produces publications including free information sheets on various autism spectrum disorders and other special needs topics. Helpline open Mon-Fri, 10am-4.30pm.


Charity that aims to ensure every child's growth is regularly assessed, and cares throughout life for the children who do not grow enough or grow too much. It is the umbrella organisation for the Growth Hormone Insufficiency, Turner, Syndrome, Iugr/Russel Silver, Bone Dysplasia, Sotos Syndrome, and Premature Sexual Maturation patient/parent support groups.


  • 21 Malvern Drive
  • London
  • B76 1PZ

Helps children and young adults who have suffered abuse, neglect and deprivation. Provides residential therapeutic homes and a variety of non-residential and community based services where the care, emotional health, and educational needs of each child is met, often for the first time in their lives.


  • 210 Borough High Street
  • London
  • SE1 1JX

Charity registered in 1975 and, in the years since, have helped hospitals with the funding of vital pieces of equipment and have given support and understanding to many families, both local and further afield. Aims to give support and understanding to parents and families and to improve facilities for children at heart units.


  • 23 Hesketh Drive
  • Heswall
  • CH60 5SP

The Children's Trust, Tadworth is a national charity providing care, education and therapy to children with multiple disabilities and complex health needs. Services include the UK's largest rehabilitation centre for children and young people with acquired brain injury; short breaks; nursing care for technology-dependent children (e.g. on long-term artificial ventilation) and a residential special school for pupils with profound and multiple learning difficulties (PMLD) - The School for Profound Education.


  • Tadworth Court
  • Tadworh
  • Surrey
  • KT20 5RU

Provide immediate financial aid, support, counselling and holidays for people under 21 who have cancer. CLIC Sargent Social Workers are based at cancer treatment centres in the UK and help families from the day of diagnosis.


  • Horatio House
  • 77-85 Fulham Palace Road
  • London
  • W6 8JA

Aims to improve women's and children's health, with special emphasis on the eradication of female genital mutilation.


  • Suite 2.1 Chandelier Building
  • 2nd Floor
  • London
  • NW10 6RB

Aims to provide children with sports wheelchairs and give an opportunity for participation in sports through help with training and travel to sporting events. Activities include giving children with a disability the opportunity to participate in sports including: marathons, athletics, skiing, rugby, basketball, fencing, tennis and snooker. Also helps with the provision of manual wheelchairs, trikes for children to use every day at home, to go to school and enable them to play with their friends.


  • 4 Chandlery House
  • 40 Gowers Walk
  • London
  • E1 8BH

Hope UK enables young people to make drug-free choices by training volunteers to become Drug Educators in their own communities.


  • 25f Copperfield Street
  • London
  • SE1 0EN

  • Telephone: 020 7928 0848
  • Fax: 020 7401 3477

Aims to work together with children to create a better future for children. In the UK, Save the Children combines practical work on the ground, often in partnership with other agencies, with research and campaigning activities to tackle the needs of children.


  • 1 St John's Lane
  • EC1M 4AR

Information Service website directory aimed at professionals working with children, young people, their families and carers in the Southwark area of London.


  • PO Box 64529
  • London
  • SE1P 5LX

Starlight Children's Foundation UK is a registered charity which aims to brighten the lives of seriously and terminally ill children between the ages of 4 and 18 by granting their wishes and entertaining them when they are in hospital. The 'wishes' fall into four main categories: travel wishes, experience wishes, tangible items and celebrity wishes. In addition to the wishes, Starlight works in hospitals by organising parties,outing, and providing Starlight Fun Centres which are mobile entertainment nits incorporating a TV, video unit and Nintendo Game Cube. The above website includes details of the organisation, fundraising and events as well as its services for children.


  • Macmillan House
  • Paddington Station
  • London
  • W2 1HD

Information, support and advice service for families and carers concerned about a child's emotional well-being. Campaigns for the provision of effective properly resourced mental heath services throughout the UK. Offer consultancy, seminars and training, leaflets and booklets for young people and publishes a bi-monthly magazine. Provides a telephone helpline service to parents and carers open Mon - Fir 9.30 am - 4 pm.


  • Suite 11
  • Baden Place
  • London
  • SE1 1YW

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