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Useful organisations

This section of DLF Data contains details of numerous voluntary organisations, Government agencies, support groups and other contacts that may be useful to older and disabled people and their carers. If you find any information that is incorrect please email Data Services to let us know which 'Contact' is incorrect and what information needs changing. If you would like to be added to the database please complete these questions.

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Chronic Fatigue Syndrome

Aims to support all who have the severe form of ME and those who care for them. This includes people who have difficulties leaving the house or bed, and wheelchair users. Services include a twice yearly newsletter, talking book service, group library, practical and emotional support, advocacy, welfare advice and assistance, telephone support helpline, fundraising, and interest groups organised by members.

Address:

  • 21 Church Street
  • Ayreshire
  • Troon
  • K10 6HT

Charity dedicated to improving the lives of people with ME.

Address:

  • 42 Temple Street
  • Keynsham
  • Bristol
  • BS31 1EH

Provides support and encouragement to children and young people with ME aged five to 25. Activities include pen pal service, bi-monthly magazine, annual conference, support from counsellors, doctors and those with ME, a postal library and parents network. Range of publications available. Helpline is open 10am-2pm.

Address:

  • 10 Vermont Place
  • Tongwell
  • Milton Keynes
  • MK15 8JA

Aims to support people with ME/CFS/PVFS, providing information and support on ME related problems, staffed by trained volunteers with personal experience of ME.

Address:

  • 7 Apollo Office Court
  • Radclive Road
  • Gawcott
  • MK18 4DF

Aims to have the best programme of medication and therapy available to people with ME and Chronic Fatigue Syndrome in the UK. For individuals the ME centre can: discover if there is a source of help near to their home; support people with ME in getting a diagnosis. Provide information for GP's and people with ME on the centre and their services; access to counselling services Provide access to support workers Provide access to self-help groups for young people and adults.

Address:

  • Disablement Services Centre
  • Harold Wood Hospital
  • Romford
  • RM3 0AR

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