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Useful organisations

This section of DLF Data contains details of numerous voluntary organisations, Government agencies, support groups and other contacts that may be useful to older and disabled people and their carers. If you find any information that is incorrect please email Data Services to let us know which 'Contact' is incorrect and what information needs changing. If you would like to be added to the database please complete these questions.

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Congenital Abnormalities

Provides support and information for families with children and young people affected by absence of the testes, whether congenital or acquired. Produces an information leaflet and a newsletter three times a year.

Address:

  • Romford

Links with a network of more than 1,000 self-help and mutual support groups for families caring for children with special needs and disabilities. Local groups usually cover a range of special needs, but more than 400 are run nationally for families where children have a specific, sometimes rare disorder. Offers support and training to parents involved in running these groups both locally and nationally. The information and advice service links families together and encourages mutual support between parents. Provides a helpline and publishes a quarterly newsletter, range of leaflets, and the CAF Directory of specific conditions and support groups. Helpline open Mon-Fri, 9.30am-5pm.

Address:

  • 209-211 City Road
  • London
  • EC1V 1JN

Promotes the relief of children with upper limb deficiencies by encouraging mutual aid and support between families. Open Mon-Fri, 9.30am-5pm.

Address:

  • P.O. Box 54
  • Helston
  • TR13 8WD

STEPS is a national charity providing support, information and practical help for children and adults affected by clubfoot, hip dysplasia and other lower limb deficiencies. We have an online discussion forum on our website and we offer a family contact service where we can put individuals/families in contact with other individuals/families on our records who are in a similar situation.

Address:

  • Wright House
  • Crouchley Lane
  • Lymm
  • WA13 0AS

Association of parents and/or people affected by Thalidomide. Work to obtain medical/educational and other aid/advice.

Address:

  • 1 Eaton Court
  • Colmworth Business Park
  • St Neots, Cambridgeshire
  • PE19 8ER

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