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Useful organisations

This section of DLF Data contains details of numerous voluntary organisations, Government agencies, support groups and other contacts that may be useful to older and disabled people and their carers. If you find any information that is incorrect please email Data Services to let us know which 'Contact' is incorrect and what information needs changing. If you would like to be added to the database please complete these questions.

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A B C D E F G H I J K L M N O P Q R S T U V W X Y Z

Heart/Cardiovascular Disease

Provides support for those affected by Alstrom Syndrome, their carers and professionals working with them. Offers help with gaining access to medical assessments, provides quarterly medical screening clinics, raise funds for research, help and advice with educational, social and benefit problems, support to families from families who live with the syndrome. They publish a quarterly newsletter, provide an annual family conference.

Address:

  • 31 Shearwater Drive
  • Torquay
  • TQ2 7TL

Offers help and support to cardiac patients and their carers. Has area groups throughout the British Isles. Produces BCPA Journal.

Address:

  • 15 Abbey Road
  • Bingham
  • NG13 8EE

Researches to enable people to live a full life free from the threat of premature death or disablement from heart or circulatory disease.

Address:

  • Lyndon Place
  • 2096 Coventry Road
  • Birmingham
  • B26 3YU

Provides information and support to families affected by the heart muscle disease cardiomyopathy and helps educate health professionals about best practice in diagnosing and treating the condition.

Address:

  • Unit 10
  • Chiltern Court
  • Chesham
  • HP5 2PX

Charity registered in 1975 and, in the years since, have helped hospitals with the funding of vital pieces of equipment and have given support and understanding to many families, both local and further afield. Aims to give support and understanding to parents and families and to improve facilities for children at heart units.

Address:

  • 23 Hesketh Drive
  • Heswall
  • CH60 5SP

Aims to provide information and support for anyone at high risk of premature coronary heart disease, especially families with familial hypercholesterolemia. Promotes the early detection and preventative counselling of families prone to premature coronary heart disease.

Address:

  • 7 North Road
  • Maidenhead
  • SL6 1PE

The Heartline Association provides information, contact and support for families who have children with congenital heart conditions. The main concern is the home environment, education and future employment of children with heart complaints.

Address:

  • 32 Little Heath
  • London
  • SE7 8HU

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