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Useful contacts

This section of DLF Data contains details of numerous voluntary organisations, Government agencies, support groups and other contacts that may be useful to older and disabled people and their carers. If you find any information that is incorrect please email Data Services to let us know which 'Contact' is incorrect and what information needs changing. If you would like to be added to the database please complete these questions.

Browse names alphabetically

A B C D E F G H I J K L M N O P Q R S T U V W X Y Z0-9

Provides assistance to young adults and children who are experiencing hardship or deprivation; principally by the use of educational and social training. Activities include: holiday provision; education opportunities; countryside maintenance training; residential care; run sports activities.

Address:
  • Redcastle Station
  • Tore
  • Ross-Shire
  • IV6 7RX

Aims to promote awareness of Narcolepsy among the general public. Provides authoritative information about the conditions. Supports the establishment of self-help groups. Encourages research into the causes and treatment of Narcolepsy. Co-operates with Narcolepsy Associations overseas. Publishes an online and downloadable newsletter. Membership available.

Address:
  • PO BOX 26865
  • Kirkcaldy
  • KY2 9BX

Exist to educate people with Ankylosing Spondylitis, the public and professionals. Also funds research for early detection, prevention and cure; to promote better treatment facilities throughout the UK and to provide special assistance to those with the condition.

Address:
  • RCN 272258
  • Unit 0.2
  • Richmond
  • TW9 2GW

Registered charity of motorcyclists giving advice and practical information to riders with disabilities. Designs and funds adaptations to motorcycles and trikes to individual specifications; publishes a quarterly magazine which includes information on licensing assessments, insurance problems and social activities. Network of representatives throughout the UK. Membership available. Telephone line open 9 am - 3 pm. Monday - Friday.

Address:
  • Unit 20 The Bridgewater Centre
  • Robson Avenue
  • Urmston
  • M41 7TE

To encourage and foster the highest possible standard of primary health care through the medium of patient participation groups at general practices.

Address:

To create a greater awareness of Premenstrual Syndrome and to campaign for its recognition by all members of the medical profession. To offer support and advice to people with the condition and their families.

Address:
  • 41 Old Road
  • East Peckham
  • TN12 5AP

NAPA exist to promote a professional attitude to the provision of activities for older people in residential settings & day centres. It aims to promote discussion on training needs; establish a database of service providers of social & theraputic activities and establish local groups & sharing days.

Address:
  • 1st Floor
  • Unit 1, Fairview Industrial Estate
  • Amersham
  • HP6 6JY

Nasen is the UK’s leading organisation supporting those who work with or care for children and young people with special and additional educational needs and disabilities (membership organisation). Provide a forum for those actively involved with exceptional learning needs and/or disabilities. Contribute to the formulation and development of policy in the area.

Address:
  • nasen House
  • 4/5 Amber Business Village
  • Amington, Tamworth
  • B77 4RP

Organisation that promotes the welfare of people who have had a laryngectomy within the British Isles, and encourages the formation of clubs.

Address:
  • Suite 16, Tempo House
  • 15 Falcon Road
  • London
  • SW11 2PJ

To encourage, develop and promote swimming among people with disabilities.

Address:
  • The Willows
  • Mayles Lane
  • Wickham, Fareham
  • PO17 5ND

To give advice, information and friendly support to all widows. A specialist advice service is available from the Association's head office; branches throughout the country provide a supportive social life. NAW monitors all government legislation concerning women & womens issues. This organisation is only for widows, but can pass basic information onto widowers.

Address:
  • 48 Queens Road
  • Coventry
  • CV1 3EH

The leading UK charity for people on the autism spectrum (including Asperger syndrome) and their families. We provide information, support and pioneering services, and campaign for a better world for people with autism.

Address:
  • 393 City Road
  • London
  • EC1V 1NG

The National Bed Federation is the recognised trade association representing UK manufacturers of beds and mattresses and their suppliers. Founded in 1912, its members today account for about 75% of total UK bedding turnover. Consulted by press, radio, TV, local and national organisations such as Citizens' Advice Bureau, Consumer Advice Centres, health authorities, schools, colleges and the general public. Publications explain the different styles of bed, how to buy them and also provide advice on bed care.

Address:
  • High Corn Mill
  • Chapel Hill
  • Skipton
  • BD23 1NL

Aims to enable parents to have an experience of pregnancy, birth and early parenthood that enriches their lives and gives them confidence in being a parent. Run antenatal classes and provide information on maternity issues, breastfeeding and postnatal support including specialists groups for cesareans and miscarriage. The NCT is also involved in research and campaigning. Helpline open Mon-Fri, 9.30am-4.30pm.

Address:
  • Alexandra House
  • Oldham Terrace
  • London
  • W3 6NH

Aims to identify and promote the well-being and interests of all children and young people across every aspect of their lives. Encourages professionals and policy makers to see the needs of the whole child and emphasises the importance of multi-disciplinary, cross- partnerships.

Address:
  • 8 Wakley Street
  • London
  • EC1V 7QE

Established in 1919 as the representative body for the voluntary sector. It is a membership based organisation, including some 850 national voluntary organisations. Through its wide reaching activities, NCVO is also in touch with thousands of other voluntary bodies and groups, and has formed close links with government departments, local authorities, the European Community, statutory and public bodies and the business sector.

Address:
  • Regents Wharf
  • 8 All Saints Street
  • London
  • N1 9RL

Aims to give the best possible start to support all deaf children, young deaf people and their families in overcoming the challenges of childhood deafness. Activities include providing the best possible start, knowledge, support and opportunities to empower all deaf children to enjoy a happy, fulfilled and rewarding life. Publishes information on all aspects of childhood deafness.

Address:
  • Ground Floor South, Castle House
  • 37-45 Paul Street
  • London
  • EC2A 4LS

Aims to improve the quality of life for people with eczema and their carers. The Society produces a range of information sheets including a list of cotton goods stockists which can be downloaded free of charge from the website. Helpline is open Mon-Fri, 8am-8pm.

Address:
  • National Eczema Society
  • 11 Murray Street
  • London
  • NW1 9RE

Provide support and information for women with endometriosis. Run a national helpline for people with endometriosis, their partners and family. Funds research into endometriosis, and raises awareness of it among medical professionals and the public.

Address:
  • Suites 1&2
  • 46 Manchester Street
  • London
  • W1U 7LS

National charity which develops policies and practices to tackle the heating and insulation problems of low income households through improvements in energy efficiciency.

Address:
  • Level 6 (Eiswick)
  • West One, Forth Banks
  • Newcsatle upon Tyne
  • NE1 3PA

Fully accredited distance learning college which aims to provide the learning resources and opportunities to enable individuals to meet their vocational and personal goals.

Address:
  • Micheal Young Centre
  • School House
  • Cambridge
  • CB2 8EB

A helpline for parents providing information and offering emotional support and a linking service between families. By yearly magazine, family events, holiday flat in Scarborough, Outlook youth project for 11-25's providing unique opportunities for young people to develop their skills and support one another.

Address:
  • Deaf Cultural Centre
  • Ladywood Road
  • Birmingham
  • B16 8SZ

Shopmobility is a scheme which lends manual wheelchairs, powered wheelchairs and powered scooters to members of the public with limited mobility to shop and to visit leisure and commercial facilities within the town, city or shopping centre.

Address:

To identify potential healers and to encourage and accelerate their development. Provide a national healer referral service to the public. Publicise spiritual healing through national exhibitions. Co-operate with doctors in a scientific programme for medical research into selected illnesses in NHS patients.

Address:
  • 21 York Road
  • Northampton
  • NN1 5QG

Self help organisation concerned with all matters relating to blind people. Campaigns for a more generous disability allowance, improved employment opportunities, a safer environment and integrated education. Run a 'Get Street Wise Campaign' which is seeking to increase public awareness of the growing problem of pavement pollution, which concerns not only blind and partially people, but elderly, deaf and disabled people, as well as parents with prams or push chairs. Produce 'Viewpoint' - a quarterly magazine, available in Braille, large print and audio tape. 'Fedtalk' - a quarterly tape-only magazine free to all members.

Address:

The Federation seeks to promote and represent housing associations and to promote good practice and provide information. They also have a directory of housing associations.

Address:
  • Lion Court
  • 25 Procter Street
  • London
  • WC1V 6NY

Aims to ensure that disabled people, and any other disadvantaged people who have difficulty in getting information have all the information they need when they need it. Currently devising a guide to providing information to disabled people in ethnic minority communities.

Address:
  • 33 Highshore Road
  • London
  • SE15 5AF

They are open Mon and Fri 10am-4pm & Tues, Wed and Thurs 9.30am-3.30pm. Supply register of qualified practitioners offering treatment.

Address:
  • James Court
  • South Street
  • Exeter
  • EX1 1EE

Run by kidney patients for their own benefit. Acts as an advice and information centre for patients, professionals and members of the public. Campaigns to increase treatment facilities, and encourages organ donation.

Address:
  • The Point, Coach Road
  • Shireoaks, Workshop
  • S81 8BW

Raise money for research into the prevention and cure of kidney illnesses, training doctors and improving transplantation techniques.

Address:
  • Kidney Research UK
  • Nene Hall
  • Peterborough
  • PE2 6FZ

Aims to have the best programme of medication and therapy available to people with ME and Chronic Fatigue Syndrome in the UK. For individuals the ME centre can: discover if there is a source of help near to their home; support people with ME in getting a diagnosis. Provide information for GP's and people with ME on the centre and their services; access to counselling services Provide access to support workers Provide access to self-help groups for young people and adults.

Address:
  • Disablement Services Centre
  • Harold Wood Hospital
  • Romford
  • RM3 0AR

Provides a music reference library and a weekly service of loaned tapes to blind and partially sighted people, from a record library of over 5.5 million items on 78's, LPs, singles, CDs and tapes, including programmes of music, stories and plays. A monthly programme is sent free of charge to blind and partially sighted listeners. New members can join free on recommendation by their GP, social services, health trust, or societies.

Address:
  • 2 High Park Road
  • Southport
  • Merseyside
  • PR9 7QL

The National Network of Assessment Centres is a UK-wide network of specialist services that work together to facilitate access for people with disabilities to education, training, employment, and personal development. Assessment Centre services include assessment and support in the use of assistive technology and/or specialised learning strategies.

Address:

Provides resources and training to support healthcare professionals on a range of issues relating to obesity, including care management, diet and exercise.

Address:
  • PO Box 6625
  • Nottingham
  • NG2 5PA

The charity works to increase understanding and awareness of osteoporosis, inform and unite health professionals, fund research into osteoporosis, work with government and the NHS to make osteoporosis a priority area of care, and to offer caring support to those with osteoporosis.

Address:
  • Bath
  • BA2 0PJ

The NSPCC has over 120 Child Protection Teams throughout England, Wales and Northern Ireland, who work with children and families to help them overcome the effects of emotional, physical, sexual abuse and neglect, and to prevent further abuse from happening. The NSPCC conducts special investigations into abuse, assessment and therapy work, drop in centres for families and preventive programmes and local training and consultancy for those working with abused children.

Address:
  • 42 Curtain Road
  • London
  • EC2A 3NH

Committed to the protection of historic buildings, coast and countryside. A free annual information booklet entitled 'Information for Visitors with Disabilities' is published each March giving details of access for enjoyable and comfortable days out. This booklet is available in standard print, large print and on tape. A list of battery-powered mobility vehicles is also available. Also published is a booklet giving details of items for visually impaired visitors to touch.

Address:
  • PO Box 574
  • Rotherham
  • S63 3FH

Website that aims to bring deaf and hearing worlds closer together. The site includes an interactive discussion forum, email subscription list, BSL sample section, myth buster, and resource for schools. Also publish BSL books and posters.

Address:
  • Eastgate House
  • 19-23 Humberstone Road
  • Leicester
  • LE5 3GJ

Information on over 250 woodland burial grounds, where a tree is planted instead of having a headstone. Cardboard and regular coffins can be mail ordered, inexpensive funerals arranged, familily organised funerals facilitated and more options available. All options are covered in their book entitled the 'New natural Death Handbook'.

Address:
  • In The Hill House
  • Watley Lane
  • Twyford
  • SO21 1QX

Network 81 is the national network of parents of children with special educational needs (SEN). Aims to work enhancing opportunities for children with SEN and disabilities by: educating parents about matters relating to their children's education; linking up and supporting groups and individual parents of children with special educational needs; raising awareness and publicising good practice in inclusion; encouraging parents to take their rightful place in the education policy making process; promoting parent-professional partnership. Activities include a Helpline operating from 10am to 1pm, Monday to Friday, offering advice and information on special educational needs, assessment, the statementing process, choosing a school, communication with schools and local authorities, rights of parents and of children. Links parents with local support groups where possible and appropriate.

Address:
  • 10 Boleyn Way
  • West Clacton
  • CO15 2NJ

Provide funds for research into methods of treatment for childhood cancer neuroblastoma with an eventual cure in mind.

Address:
  • 54 Forest Road
  • Richmond
  • London
  • TW9 3BZ

Aims to secure improved care and public support for people with a neurological condition. Identifies issues of mutual concern and pursues agreed courses of action. Promote the collection and exchange of information on neurological conditions. Acts as a forum for relevant target audience. Seeks to inform and influence policy makers about the needs and circumstances of people with neurological condition.

Address:
  • Dana Centre
  • 165 Queen's Gate
  • London
  • SW7 5HE

New Approaches to Cancer is the national registered charity which promotes the benefits of holistic and self-help methods of healing to cancer patients. Main office acts as the nerve centre of local self-help groups, holistic practitioners throughout the UK. Operate a referral system and information service, directing people with a cancer problem to their nearest sources of help. Have connections with other parts of the world, such as Europe, the United States of America, Mexico, Australia and so on.

Address:
  • PO Box 194
  • Chertsey
  • KT16 0WJ

Aims to improve child health in the UK by funding and promoting basic medical research into all birth defects. Provides support to people awaiting the outcome of tests or having received a diagnosis.

Address:
  • Newlife Centre
  • Hemlock Way
  • Cannock
  • WS11 7GF

National health information service available 24 hours a day. Provide information on charter standards, local NHS services, how to complain, improving health, common diseases and conditions, self help groups and hospital waiting times. Callers can also listen to a series of tapes on conditions and treatments.

Address:
  • Riverside House
  • 2a Southwark Bridge Road
  • London
  • SE1 9HA

Offers emotional support to those with NPD and their families. Seeks to provide a forum for sharing ideas and resources and to provide accurate up-to-date information about the disease and its management.

Address:
  • Suite 2
  • Vermont House
  • Washington, Tyne and Wear
  • NE38 8LR

Demonstration kitchen, lounge, bedroom, bathroom and office with equipment for demonstration. The British Red Cross provides short-term loans of equipment such as wheelchairs, commodes, bathing aids, walking frames and crutches.

Address:
  • Wood Farm Lane
  • Gorleston
  • NR31 9AQ

Aims to improve the conditions of life for all asylum seekers and refugees. Provides free and confidential assistance advice/information and support to asylum seekers and refugees.

Address:
  • 2 Jesmond Road West
  • Newcastle-Upon-Tyne
  • NE2 4PQ

A demonstration and resource centre concerned with the practical aspects of daily living for people with disabilities, their carers and professionals. They provide mobility aids and equipment ranging from short term wheelchair hire to sales, installations and vehicle adaptations.

Address:
  • Glan Clwyd Hospital
  • Sarn Lane
  • Rhyl
  • LL18 5UJ

Independent living centre, providing impartial independent advice on products. Open Mon-Fri 9am-4pm.

Address:
  • Gladstone Road Resource Centre
  • Gladstone Road
  • Northampton
  • NN5 7EJ

Provide a free advisory service on all financial and legal issues to be considered when obtaining and paying for care. Advice encompasses local authority assessment and charging procedures, entitlement to DSS benefits, legal matters ie enduring power of attorney, and how best to invest capital to meet care costs. The NHFA aims to enable people to meet care costs for life whilst preserving their original capital, independence, dignity, and choice. Free long term care guides available.

Address:
  • St Leonards House
  • Mill Street
  • Oxford
  • OX29 4JX
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