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Useful contacts

This section of DLF Data contains details of numerous voluntary organisations, Government agencies, support groups and other contacts that may be useful to older and disabled people and their carers. If you find any information that is incorrect please email Data Services to let us know which 'Contact' is incorrect and what information needs changing. If you would like to be added to the database please complete these questions.

Browse names alphabetically

A B C D E F G H I J K L M N O P Q R S T U V W X Y Z0-9

Family-centred charity which provides an innovative education for life for children with sensory motor disorders, which is tailored to their individual needs.

Address:
  • Philip Green House
  • Coventon Road
  • Aylesbury
  • HP19 9JL

Helps children and young people with speech and language disorders to communicate and develop functional language through the use of Paget Gorman Signed Speech (PGSS). PGSS is a manual signing system which reflects normal patterns of English with reference to the main grammatical features of the language. It is used in approximately 100 special schools and units in the UK. The Society runs courses of training, awards qualifications and publishes a range of supporting materials.

Address:
  • 2 Dowlands Bungalows
  • Dowlands Lane
  • Smallfield
  • RH6 9SD

The Pain Relief Foundation is a UK Charity which funds research into the causes and treatment of human chronic pain and the education of doctors and health professions in pain management. The Pain Relief Foundation aims to advance and promote all forms of medical research into the relief of pain. A series of leaflets dealing with chronic pan conditions are available on our website.

Address:
  • Clinical Sciences Centre
  • University Hospital Aintree
  • Liverpool
  • L9 7AL

Paintings in Hospitals is a registered charity that lends original works of art to hospitals, hospices and other healthcare facilities throughout the UK. Our aim is to reduce sickness, anxiety and stress for patients, healthcare staff and the general public. We support the clinical outcomes of thousands of patients each year through our art library and interactive arts in health projects.

Address:
  • 1st Floor, Menier Chocolate Factory
  • 51 Southwark Street
  • London
  • SE1 1RU

Provide support for parents under stress and facilitate and maximise a family's capacity to care for its child, thereby making a contribution to the prevention of child abuse and neglect. Activities include accredited parenting courses run nationwide, development of innovative projects which provide support to families, information and publications on a variety of family issues and in -house training and consultancy for professionals working with families.

Address:
  • 520 Highgate Studios
  • 53-79 Highgate Road
  • London
  • NW5 1TL

Charity which deals with placement of children for adoption together with the support, assessment and counselling of all the parties involved.

Address:
  • 7 Southern Court
  • South Street
  • Reading
  • RG1 4QS

Work closely with disabled adults, to bring their understanding and experience to parents, so that parents can become real allies to their disabled children. Provide helpline, training, groups in school, representing parents, links with the inclusion movement. The Inclusion helpline is staffed by parents who have been there and know the score.

Address:
  • 336 Brixton Road
  • London
  • SW9 7AA

Parkat compares Airport parking facilities across the UK without any extra charges. We do not just compare the price, we also display which car park has disabled access and what security features are available at each car park site.

Address:
  • Pavillon 2
  • Salford Innovation Forum
  • Salford
  • M6 6FP

Aim to help patients and their relatives with problems arising from Parkinson's Disease; to collect and disseminate information on the disease; to encourage and provide funds for research into the disease. Telephone service open Mon-Fri 9.30am-5.30pm excluding bank holidays offering listening, advice, information, signposting and support on Parkinson's disease for people with Parkinson's, their relatives, carers and professionals. Membership available to all people with or interested in Parkinson's Disease.

Address:
  • 215 Vauxhall Bridge Road
  • London
  • SW1V 1EJ

The Parksiders is a club for Phisically Disabled Adults between the ages of 18 and 64 years, who reside in the local area. The club offers social, recreational and educational facilities for its members, within a Day care enviroment.

Address:
  • Red House Court
  • Clarkes Way
  • Dunstable
  • LU5 5BH

Helps partially sighted people to make the best possible use of their remaining sight. Activities include providing information and advice, providing vision equipment, printing and enlargement services and promotes local contact and setting up of self-help groups.

Address:
  • Head Office 7/9 Bennetthorpe
  • Doncaster
  • DN2 6AA

Advisory service, and collective voice, for patients, health professionals, and the drug industry. Provide information on patients' rights, complaints procedures and access to health services. Helpline open Mon -Thurs 10 - 4pm.

Address:
  • PO Box 935
  • Harrow
  • HA1 3YJ

Offer a healing programme that deals with the whole person and is complementary to medical treatment. There are also educational programmes for health professionals.

Address:
  • Penny Brohn Cancer Care
  • Chapel Pill Lane
  • Pill
  • BS20 0HH

We are the leading UK charity specialising in complementary support for anyone affected by cancer, along with their partners, family members, carers, or other supporters. All our services are offered free of charge. Working alongside medical treatment, we aim to help people live as well as they can given the impact of their cancer diagnosis. Penny Brohn Cancer Care offers a unique combination of physical, emotional and spiritual support using complementary therapies, lifestyle information and self-help techniques for anyone affected by cancer at any stage of their illness.

Address:
  • Chapel Pill Lane
  • Pill
  • Bristol
  • BS20 0HH

Aims to improve the service people receive, whether they are already a pensioner or are planning for their retirement, no matter how far off it might be. Activities include: working out the amount of State Retirement Pension and Minimum Income Guarantee that people are entitled to. Paying entitlements and answering questions over the phone and by post (or by email where possible). Telling people how they can access other pension-related entitlements and services. The Pensions Service is currently setting up local centres throughout the country. Publications include a number of Pensions related factsheets and a Customer Charter.

Address:
  • Department for Work and Pensions
  • Caxton House
  • London
  • SW1H 9DA

People Matter IW has developed an Independent Living Centre at Downside Community and Learning Centre in Newport. The Independent Living Centre offers a free and impartial service to Island residents who are looking for equipment and advice to enhance their independence. People who require support are assessed to see which aids and adaptations might meet their needs. They are able to try out a range of different equipment to help them to decide what is best for them. The centre has areas set up as the kitchen, bedroom and bathroom to enable people to try out aids and adaptations in a more realistic setting. The aim of the service is to enable people to try before they buy.

Address:
  • Independent Living Centre
  • 11 Orchard Street
  • Newport
  • PO30 1J2

Provides one-off grants to older people and people with disabilities or mental health issues. Financial assistance can be provided for electrical and gas appliances, household goods, and clothing. All applications must be made by a social worker employed by the local or health authority.

Address:
  • The Percy Bilton Charity
  • Bilton House
  • London
  • W13 9NB

Aims to help families of children and adults suffering from Perthes disease (a form of Osteochondritis), and associated conditions including Multiple Epiphyseal Dysplasia, Kholer's Disease, Osgood-Schlatter's Disease, Larsen-Johansson Syndrome, Panner's Disease, Schuermann's Disease and Sever's Disease. Helps and advises families of children suffering from Perthes' disease and associated conditions. Volunteers are 'at the end of the telephone line' for any worried or distressed parents, and will visit them if possible or put them in touch with a family living locally. Advice on practical and financial help available for a child suffering from Perthes' disease, or MED (Multiple Epiphyseal Dysplasia). Have supported families and supplied equipment for children with CDH (Congenital Dislocation of the Hip). Family membership available.

Address:
  • P.O Box 773
  • Guildford
  • GU1 1XN

Aims to integrate people with and without physical disabilities through 300 clubs in England. Activities incude social meetings, sports, outings and holidays. Some groups are specifically for younger people up to the age of 25.

Address:
  • Summit House
  • 50 Wandle Road
  • Croydon
  • CR0 1DF

The Philadelphia Association was founded in 1965 and is a member of the UK Council for Psychotherapy (UKCP). It is a registered charity. The Philadelphia Association is a charity concerned with the understanding and relief of mental suffering. The association runs a small number of therapeutic community households, also psychotherapy training courses and public lectures and conferences. An Introductory Course is open to those interested in the general field of psychotherapy.

Address:
  • 4 Marty's Yard
  • 17 Hampstead High Street
  • London
  • NW3 1QW

Independent UK focal point for telecommunications and the needs of disabled and elderly people. The group acts as a catalyst in this area by organising conferences and seminars on telecommunications and disability. It also acts as the UK reference group to the European project COST 219bis on telecommunications: Access by disabled and Elderly People.

Address:
  • 1 The Grange
  • 85 High Street
  • Iver
  • SL0 9PN

An organisation for disabled photographers and also those willing to support to work of photographers with disabilities. It offers regular meetings including photoshoots and opportunities to develop photographic skills. Its website www.photographerswithdisabilities.com features members work and includes and active forum and photo gallery.

Address:
  • 19 Albert Avenue
  • Bath

Aim to assist around 2,000 children with disabilities mainly from the British Isles, in making a pilgrimage to Lourdes at Easter and to ensure adequate provision of voluntary medical and nursing helpers to accompany them. Also to provide accommodation for other people with disabilities at a specially adapted house near Lourdes between Easter and November in two groups a week, each of 40 to 50 pilgrims.

Address:
  • Oakfield Park
  • 32 Bilton Road
  • Rugby
  • CV22 7HQ

Local healthy living centre offering a range of services and activities to help people of all ages and abilities to improve their health and wellbeing.

Address:
  • Carers Way
  • Newton Aycliffe
  • DL5 4SF

Provides information and support for people with pituitary condition, carers and health care professionals. Operates 31 regional support groups, the services of an endocrine nurse, and information helpline and comprehensive website, also free literature on pituitary conditions.

Address:
  • 86 Colston Street
  • Bristol
  • BS1 5BB

Campaign for the use of plain English in public information. Website contains various guides to help you produce well written and well designed documents, which can be downloaded free of charge. Commercial services include training and editing. Provide services to government departments, local councils, banks, building societies, solicitors, schools and commercial companies. Open Mon-Fri, 8am-5.30pm.

Address:
  • PO Box 3
  • New Mills
  • High Peak
  • SK22 4QP

Theatre which is open Tuesdays to Saturdays, all year except September. The main auditorium is wheelchair accessible via a lift. The theatre is equipped for hearing aid users via an induction loop system. Signed performances are offered for main theatre shows. The theatre provides organised workshops on drama, crafts and puppetry. In-school workshops can be arranged for children who cannot travel. Courses are run for teachers, therapists and anyone working with people with a disability.

Address:
  • 240 The Broadway
  • Wimbledon
  • SW19 1SB

Peer support for people living with HIV by people living with HIV. Aims to empower those living with HIV to make informed choices and to ensure that the voice of HIV positive people are heard.

Address:
  • 345 City Road
  • London
  • EC1V 1LR

Organisation that addresses the needs of people with PWS, their parents, carers, professionals from health, education and social services who work with them.

Address:
  • 125a London Road Derby
  • Derby
  • DE1 2QQ

Promote awareness and early diagnosis of primary immunodeficiencies. Provide information and support and encourage original research.

Address:
  • Alliance House
  • 12 Caxton Street
  • London
  • SW1H 0QS

The trust works with 14 to 30-year-olds who have struggled at school, have been in care, are long-term unemployed or have been in trouble with the law. It gives practical and fiancial support, developing skills such as confidence and motivation, enabling young people to move into work, education or training.

Address:
  • Prince's Trust House
  • 9 Eldon Street
  • London

Aims to make it easier for carers to cope by providing support, information and practical help. Provide training and support for Carers Centres as well as raising funds for development work. It also has a range of grant schemes for carers.

Address:
  • 32-36 Loman Street
  • Southend Road
  • London
  • SE1 0EH

PACEY works for the well being of children and is accessible to all. They promote childminding as a quality & education service, and inform childminders, parents, central & local government and employers about best practice in childminding, other childcare & education provision, to meet the needs of children and those directly/indirectly involved in such care. NCMA is a campaigning organation, seeking recognition of the vital role of childminding in society and for the resources necessary for a high quality childminding service.

Address:
  • Royal Court
  • 81 Tweedy Road
  • Bromley
  • BR1 1TG

A national service which provides independent and impartial information on continence products and services for adults and children. A display of products and equipment is available on site, and the website has information available to download. Clinical and product specialists provide impartial, evidence based advice and information to callers. Helpline available 9am-4pm Mon-Fri.

Address:
  • Disabled Living, Burrows House
  • 10 Priestley Road
  • Worsley
  • M28 2LY

Aims to improve the care of people whose lives are affected by prostate cancer. Offer a telephone helpline, UK support network and range of literature. Carries out research to improve diagnosis and treatment. Helpline open Mon-Fri 10am-4pm.

Address:
  • 1st Floor Cambridge House
  • 100 Cambridge Grove
  • Hammersmith
  • W6 OLE

Aims to raise awareness and help people with psoriatic arthritis and it's associated skin disorder, psoriasis. There are regular newsletters and journals, information sheets, access to local contacts and an annual conference.

Address:
  • PO Box 111
  • St Albans
  • AL2 3JQ

Founded in 1968 and has become an important self-help organisation providing support and mutual aid for sufferers. It is also the main source of information on all aspects of the condition. More research projects into the cause, treatment and cure of psoriasis are being supported each year with larger grants, and community acceptance and understanding have already been increased by publicity and education. The Association works continually to improve standards of patient care and has established strong national and international links to achieve this. Membership is open to anyone.

Address:
  • Dick Coles House
  • 2 Queensbridge
  • Northampton
  • NN4 7BF

Run a Helpline open to individuals and organisations, which is staffed by solicitors who specialise in public law remedies. The helpline advises on complaints procedures, and court proceedings (judicial review), but does not offer advice on compensation claims for medical negligence, but will advise on refusals to treat and refusal of continuing care on NHS.

Address:
  • 150 Caledonian Road
  • London
  • N1 9RD
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